Tag Archives: hospital

Snacking Carefully…

So I’ve been on TPN over a week now, seems to be helping with energy, but not so much with weight yet. And I tried eating here and there, and then days of not eating, and my stomach feels the same regardless. It get’s burbly and distended and a bit painful even if I don’t put anything in it… So why should I go hungry entirely. And just sips of water… I ended up eating most of a salt packet yesterday, cos I was desperate for some flavour. (Not all at once ofc)

salt packet

Managed to find a pic of the actual salt packets they have at this hospital. How sad am I?

 

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The Sixth Day… of No Food – Torturous delicious smells…

I smell roast potato’s… and gravy… and meat… I can smell everything…

foods

I’m on the 6th day of no food. On the Elemental 028 Extra liquid diet. And it’s roast day on the ward… so all I smell is deliciousness… Technically it was Modulen I started on Tuesday, but that didn’t agree with me, so after 2 and a half days of that they decided to try me on the Elemental 028 Extra stuff. Which has settled day, after the first day of normal food pains after just two 250ml cartons… how liquid can cause the same amount of pain as solid food I don’t know. But it did. But the next day I kept on, managed 3 cartons through the day, 2 of which were watered down and some suggested. Seemed to help. Unlike the dietitian’s and doctor’s instructions, you’re not meant to go right onto the full 7-8 cartons a day, you’re meant to build up to that over a week. So why the hell they were trying to force feed me that much right away I don’t know. Probably because I’ve lost so much weight and haven’t gained anything since coming into hospital… but really… you’d think their medical knowledge would extend that far. Even the nurses seemed shocked at the number I was told I had to drink… They all feel sorry for me, as do the staff who come round asking what people want for breakfast/lunch/dinner. They’ve learned to avoid me… and just give me sad looks instead…

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So…

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I managed to avoid the hospital. For a week longer than anticipated. Maybe it was my sheer willpower in not wanting to be in over Christmas and my birthday? Maybe it was luck? Either way. Exactly one week after my little upset, I got worse again. Pain for hours, and spasm-y pain that came and went in waves. Most painful pain I can recall feeling. That didn’t let up if I moved or anything, because usually it eases. But it just stayed gurgly and bubbly and painful for hours, which was unusual. Which led me to being fast passed to the AMU ward at the N&N via my local GP, who was ever so helpful, and sympathetic, considering he was on call.

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(False alarm) Looks like I’m being admitted…

Been in pain for hours and throwing up for like 4 hours… called 111, got advice. so yeah. just a note.

EDIT: So I almost got sent to hospital last night due to all the upchucking and pain etc. Had an emergency medical practitioner come round to check on me, see if I was sick enough to be admitted the quick way, but of course that’s when I stop throwing up, for a little bit. I’m always more stoic around medical/family folk. Try to play things down even if they’re really bad.
Gave me an antisickness tablet, then left, said to call if there were any problems. Apparently moving me upstairs caused me to hurl again *yay*, and I woke up at 5:30 to hurl. But haven’t since. Yet. (It’s 10:40 now.) Sipping on water, hoping it stays down. Hoping I don’t land myself in hospital over the Christmas period. Not that I’ll be indulging much anyway…

To trim the fat, or not trim the fat

boo

So bacon with too much fat on is apparently a very bad idea. I can’t think what else messed up today, so it must have been the bacon muffin I had after my gastro appointment(will elaborate later). But it seemed to just sit in my stomach all day till I hurled in the evening. Tmi I know, but most folks with Crohn’s and IBD have to get used to talking about bodily functions, so it’s probably not that shocking.

I know some things I’ve read have said that fat in general is harder to digest, and therefore bad for Crohn’s. Which I’ll go with, since processed hot dogs and stuff like that seem to bother me, during a flare up anyway. Even though I ate canned/jars of hot dogs loads before. And beans… I miss baked beans… but right now thinking of food isn’t what I wanna do. But there are good fats we need too right? Either way, I went from feeling meh, to feeling seriously bleh… literally.

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Distractions

Is it all in our heads? Some people seem to think Crohn’s and IBD related diseases can also be psychosomatic, which in layman’s terms basically means stress and stuff can affect us in a very very bad way, more than people without IBD. Our guts might be attuned to our mental well being even more so than people who get butterflies in their stomach when worried, or get stomach aches when they’re stressed out. Folks like us with Crohn’s and IBD would react… worse… in theory. Again. Theory. Because there is still so much to be learned about Crohn’s and IBD, alot of it’s still theory, and heck, they’re not even sure what causes it yet…

So I figure, distractions are key. Keeping your mind OFF THE CROHN’S. When I was first diagnosed, I think I was probably revising/studying for exams and stuff, I know I missed an exam because of symptoms and had to do it later on. So that would align with the stress/mental health theory.

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